Jaime's second year of life has been no less eventful than her first. J has now had her CI for 15months, it has melded to become part of her, part of who she is. J wakes up in the morning bright, bubbly and ready to play, amongst her morning routine there is always a request for her 'ears', she takes such joy in the sounds around her. Sitting in her room her ears prick; What's that? Who can she hear? "DADDY!!!"... J races down the hall to the next room and leaps into bed to give daddy good morning cuddles, I can't help but smile, this is my little deaf girl, the girl that started in a Quiet World.
|Awaiting our new arrival|
|Newborn Hearing Screen for Baby B|
Chronological age: 1year 11months
Hearing age: 1year 1month
Speech and Language scores: 1year 11months and 2years 1month!!!!
Not only had she shown speech and language skills appropriate for her age, she had even managed to nudge ahead.
As any parent of a hearing impaired child knows, half the battle is to catch up to their hearing peers... We are so thrilled Jaime has made it, our hard work is paying off. The work isn't over of course, Jaime will still need regular speech therapy and her learning and listening environment will always have to be monitored to ensure she continues to keep up with her peers.
*the biggest achievement of course is to make it out of there with both her CI and HA still on her head!
Unfortunately our high spirits weren't to last long. not much more than a week later I woke to every CI parents nightmare, Jaime, who had been battling a cold for a couple of weeks woke grumpy and lethargic, I took her temperature... 40C! Oh my, well we certainly weren't going to daycare today... then I tried to place Jaime's coil, she yelped and refused to let me put on her processor, this was certainly unusual behaviour for my little girl who loves to hear. I swept back her hair and there behind her ear was a large swelling, hot and red.... My heart leapt... what do I do! The phone calls began and soon I was packing my precious little girl and baby boy into the car and heading in to our local hospital. Once there J was immediately started on intravenous antibiotics, her ENT was contacted and the decision was made to transfer her to the Royal Childrens Hospital (RCH). At this stage I was still unsure what was going on, I knew J had ended up with an ear infection (her first.. she doesn't do things in halves!) and I knew she required some more IV antibiotics, what I didn't know was what was in store for my Jaime.
|A special visit from bestie T|
Two days later and thankfully J's infection was beginning to succumb to the antibiotics (I would really hope so as she was on a duo of antibiotics every two hours!), she wouldn't require further surgery for now, wow what a weight lifted!
|Good morning Meerkats|
|Exploring the RCH sculpture|
|Not a bad view for a hospital|
|No, it's not a bear!!! |
Meeting one the RCH therapy dog's
|Daddy brought J some|
Our final day arrived, once again Jaime was to head into surgery, this time to place a central line (a drip directly into the large vessels in her chest), we were heading home finally, but Jaime had to continue with daily IV antibiotics.
For us this meant daily visits to our local hospital, although much smaller that the RCH, the staff made us feel welcome (it helped that Jaime walked in everyday with a big cheery 'elo!! and her signature grin). Jaime impressed me over the next 3weeks, as we arrived on the paediatric ward she would strut down to the procedure room, jump on the bed (request the usual bubbles of course) and then proceed to instruct the nursed on how to take her vitals! She would make a brilliant little nurse one day!
|Taking mummy's |
|Strutting into hospital like a rockstar...|
Finally we catch up to today... Jaime has been off her IV antibiotics for a few days and we have begun her long course of oral antibiotics (3months worth!) she is bright and happy with all signs of infection at bay. Her CI is functioning well and her speech is continuing to flourish.
What about her Hearing Aid I hear you ask? Now thats a whole new kettle 'o fish...
Having been away from my blog for such long time don't forget to post your comments or questions below...
**In light of our recent hospital stay I wish to encourage you all to not only support our major children's hospitals such as the RCH, but also consider popping in to your local paediatric ward and seeing what you can do to help. These wards in our local hospitals tend to get forgotten, we all see the big fundraisers like the Good Friday Appeal, and those funds are certainly put to good use, however it was eye opening to see our local paediatric ward holding a raffle simply to afford a wheelchair.
|Our final goodbye to the RCH Fa-Fly...|
|...and the big fish|